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Having a baby with special needs: the early weeks
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Caring for a newborn baby can be immensely rewarding and challenging.
If your newborn baby has physical or intellectual disabilities, it can be more difficult. A baby may have special needs due to a premature or difficult birth, because of a chromosomal condition or a condition that occurred during the pregnancy.
There will be much to learn about their condition, and they may require special care. There will be plenty of information and support to guide you during the early weeks after birth.
Medical care for your baby
The care of children with special needs will be supervised by a paediatrician (a doctor who specialises in caring for babies and children). If your hospital doesn’t have the facilities to care for your baby, they may go to a different hospital by road or by air. It’s often possible for you or your partner to travel with your baby to the new hospital.
Babies with health problems usually need to stay in hospital for special attention after the mother has gone home. It’s important for you and your baby to get to know each other.
You’ll be encouraged to do this as soon as possible after the birth, even if the baby is in a humidicrib.
Finding information about your baby’s diagnosis
Some parents know in advance that their baby will have a problem. Other parents may find out at birth or in the first weeks or months of their baby’s life. This can be a stressful time.
It’s important to understand your baby’s condition so you can take part in treatment decisions. You may find it difficult to understand and absorb everything that is said to you at first. You may also find that not all health professionals communicate well with parents.
Ask for the information again if you feel you need to. If you can, get a friend or relative to come with you, or take a pen and paper so that you can make some notes.
Can I get any help or support?
Whether the news comes before or after the birth, you may have feelings that are hard to cope with.
Grief, anger and disbelief are natural at this time.
Many parents, especially mothers, are worried that they are somehow to blame for the problem — but this is very unlikely. You may hesitate to touch and handle your baby at first.
The hospital staff will understand your feelings and try to help you cope with them. You need as much support and information as you can get. Talking to your midwife, doctor, hospital staff, social worker or counsellor may help.
Talking to parents of babies with the same condition can also help. Ask your midwife, doctor, hospital or community health centre to put you in touch with appropriate community organisations or support groups. These organisations can provide information and support for you and your family.
You can also call Pregnancy, Birth and Baby on 1800 882 436 to talk to a maternal child health nurse.
Sources:
Raising Children Network (When your unborn baby has chromosomal abnormalities or disability), Raising Children Network (Parent feelings: children with additional needs)Learn more here about the development and quality assurance of healthdirect content.
Last reviewed: August 2020
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This information is for your general information and use only and is not intended to be used as medical advice and should not be used to diagnose, treat, cure or prevent any medical condition, nor should it be used for therapeutic purposes.
The information is not a substitute for independent professional advice and should not be used as an alternative to professional health care. If you have a particular medical problem, please consult a healthcare professional.
Except as permitted under the Copyright Act 1968, this publication or any part of it may not be reproduced, altered, adapted, stored and/or distributed in any form or by any means without the prior written permission of Healthdirect Australia.
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Special for babies
Some believe that it is not advisable to buy drugs in children's dosages. Cheaper and easier to buy an adult drug and split the pill in half. This is fundamentally wrong!
Our expert Vera Rush,
PhD pediatrician
Dosage forms for children are a physiological necessity dictated by the peculiarities of the functioning of their body. It will be enough for any reasonable parent to give one of the following arguments to make their choice in favor of the drug in the children's form of release:
* The rate of absorption and excretion of the medicinal substance in children is not the same as in adults.
It is with these features in mind that medicines for children are created
* due to immaturity, the child's immune system is especially sensitive to infection, therefore, medicines for children under one year old have a sterile form of release
* half the adult dosage may not be an adequate substitute for a pediatric dosage. The active substance inside the tablet is not always evenly distributed, which means that the child may receive either a larger or smaller dose. Therefore, it is necessary not to crush adult tablets, but to give exactly children's
* Auxiliary substances necessary for the creation of medicines for babies are harmless and made on the basis of natural products, including dyes.
A matter of taste
Oddly enough, but aromatic additives in children's preparations are not just pampering. If the child enjoys drinking the medicine, he will not spit it out and will receive the entire required dose.
The psychological effect is also important - the absence of unpleasant sensations gives a positive attitude and plays a significant role in recovery. In order to disguise a specific taste, flavoring agents such as citrus extracts, vanillin, cocoa and fruit syrup are introduced into the drug.
And when vice versa
Adults can safely take children's drugs if there is an urgent need, but there was no drug with a suitable dosage. There will be no harm for sure. But the effectiveness of therapy in some cases will be lower. For example, you can use a baby vasoconstrictor spray. But an even larger number
injections will not help the nose breathe fully - after all, the content of the active substance is low. And then, such treatment is not economically feasible.
I cannot give my child fever-reducing syrup. No matter how it tastes, an allergic rash always appears on the skin. What to do, maybe take along with an antihistamine?
- No, it's not worth it.
You can give the medicine in the form of rectal suppositories or tablets. For example, paracetamol in tablets of 200 mg is approved for use from the age of 6.
Do I need to reduce the dosage of herbal infusions?
- Of course. Fees or individual herbs allowed to children are usually prepared at the rate of 1 / 2 tablespoons per glass of water. After the infusion boils in a water bath, it is filtered, and the amount of liquid is adjusted to 200 ml. Usually this portion is divided into three doses per day.
Is it possible to give a child the usual dose of an antipyretic if he has lost weight or gained weight?
- Not. Correction of NSAIDs is carried out precisely by weight and age. If there are any changes, then a different dose should be selected.
Half an hour after the insertion of the candle, the baby had diarrhea. Should I give the medicine again?
- No, it doesn `t need. And if the liquefaction of the stool, in principle, accompanies the disease, then the candles must be replaced with a different form of release.
The pediatrician prescribed bifidobacteria to the child. Is there a difference between an adult drug and a children's drug?
- Of course. The composition of the form for the child includes slightly different types of bacteria, and besides, many preparations are additionally enriched with B vitamins. They differ from adults, so it is better to buy what the doctor recommended.
Journal "Russian Pharmacies" №17-18, 2016
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20 little things that will strengthen bond with children
Of course, any parent loves his child.
And with the help of these tips, there are several more (not at all serious, but effective!) Ways to express love, tenderness, support and care to children. Shall we try?
1. Make an exhibition of children's drawings or crafts: allocate a special place in the apartment where the works will be placed, sometimes update the "exposition". Frame a couple of the best drawings and hang them in your bedroom.
2. Going on business? Invite your child to join you, and then go to a cafe - eat something sweet and just chat.
3. Put a note from you in your child's backpack or lunchbox: words of love, hearts or emoticons. Or, for example, a small chocolate bar.
4. Did your son or daughter give you a homemade necklace or bracelet made of shells, pasta or buttons? Put it on for a visit or for work - so that the children notice it. Well, or, at least, go out of the house in this decoration, and then how will it turn out.
5. Go grocery shopping together in carnival costumes or fancy dresses. It really improves your mood!
6. Make breakfast pancakes shaped like hearts, flowers, or the first letter of your child's name. Tell me this is for him!
7. Ask your child to teach you how to play their favorite computer game. Play together and try to show what you are really interested in.
8. If you are a parent who quarreled in front of the children and went to different rooms, angry and upset, say so, and do not pretend that everything is in order. Without details, of course: "We offended each other, but we will definitely figure it out and make peace." And let the children see that you have reconciled.
9. You look into the children's room, and it looks like a hurricane has swept through there and swept everything in its path. The child has already prepared for you to get angry - and you close the door and go to drink tea, singing a song.
10. Do not bombard your child with “How are you?” and “What did you do today?” as soon as he returned home from kindergarten or school. Especially if he looks tired and upset! First lunch, and then conversations.
11. Make up your own little traditions: for example, on Fridays you all watch a movie together and eat popcorn (and everyone chooses a movie in turn), go to the park to feed the ducks, and once a month you make sure to bake a pie.
12. Ask your child to teach you how to do something you don't know how to do. For example, tie shoelaces in some special way, or perform some kind of sports element, or draw a cat. When you succeed, be sure to note what a good teacher he is.
13. When the child is somewhere nearby, pretend that you don’t see him and tell your husband or grandmother about his successes or a good deed: “Misha helped me so much yesterday!”.
14.
When you are all busy cleaning or preparing dinner, turn on upbeat music and offer to dance right now.
15. If there is more than one child in the family, sometimes take only one of them with you for a walk - but in such a way that everyone knows exactly when his turn will come, and he will also spend a special day only with mom or only with dad .
16. Hang a magnetic board in a conspicuous place in your apartment and leave notes to each other. These can be requests, thanks, or just something cute and funny, for example, portraits of each other.
17. Make an album especially for your child with his or her childhood photos, from the moment of birth to the current age. Consider them together and tell what you were doing on the day the photo was taken: “Look, you fell asleep right on all fours and in one sock. We just got back from a very long walk.”
18. Tell us about your own childhood.
